Tag Archives: Andy Tysoe

Meaningful change in dementia care is not just for #FabChangeDay … hopefully

I once toyed with the idea of doing the clinical part of my medical finals in Cambridge in 2001 in a White Del Monti suit. It seemed like a good idea at the time.

The reason I didn’t was because I thought that I might get marked down for being anti-establishment, arrogant, too disrespect to the patients, and ultimately ‘fail’.

Being an innovator is a high risk strategy, but means you can’t always conform. What I felt enormously frustrating about the NHS is how status and kudos comes with your position on the hierarchy ladder. I sometimes think that doing a Ph.D. as part of a medical degree is the worst thing you can do for your wellbeing, as one minute you’re presenting original results to an international conference, and the next you’re pushing a notes trolley and only speaking when spoken to.

It’s worth thinking why the NHS adopts this ‘normalcy’, and I think this intense feeling of shared values means that the stakes are high if you’re perceived in any way at all as a ‘trouble maker’. The NHS is not the only culprit – I found when applying to corporate law firms in the City years later, recruitment managers loved memes from their graduate prospects thrown back at them. Even the psychometric testing, often determining your eligibility for interview whatever your personal charm, is designed to squash thought diversity, or even dare I say it you as a person.

The thing is – we are all actually different. Think about how ill conceived the English eduction system is. We actively reward people who can do the most set piece problems in a defined time correctly. We don’t look at how the population at large can solve problems between them. We don’t encourage ‘neurodiversity’, and yet people should be praised for being able to different things.

Here’s the bit in the blogpost where I protest too much.

I am not into ‘social movements’ at all. I cynically tend to think of hashing campaigns as a manipulative marketing device, encouraging groupthink. At worst, I think they become an instrument for boosting certain people’s egos and ‘bottom line’ than the causes themselves.

I look at the repetition of terms such as ‘change leader’, ‘change catalyst’, ‘change maker’, repeatedly used across jurisdiction, and think far from encouraging people to break the mould the ‘change days’ identify who plays ball (and who doesn’t). Give the conference slot to the guy who can say the right things. Sure, change leaders are rare people within organisations, and not often the people who’ve bunged “CEO” on a description of their area of industry.

But I think I can spot people who put all they can into what they’re doing, as they’re genuinely motivated. Andy Tysoe, clinical nurse specialist in dementia at Countess of Chester, I am quite sure has faced torrential headwinds when trying to put the needs of people with dementia as persons first.

I am sure that he has had to be the David against the big Goliath of people who have the power and resources to dwarf his excellent innovative projects, such as making Dementia Friends appropriate for tier 1 education in an acute hospital setting.

I am sure that he raises eyebrows when he likes a person with dementia being forced to ‘think faster’ in the same way you might ask a person with lower limb physical disability to ‘run faster’.

It’s been often argued that you need to be an externality such as Uber to ‘disrupt’ an industry like the taxi industry (please note that this is not true disruption in the meaning of the term made famous by Prof Clay Christensen at Harvard).

But I think it’s great there’s somebody within the NHS who is on the same page as me. Andy and I are even meeting up at my book launch in Camden next year, to ‘celebrate’ my rather technocratic analysis of person-centred integrated dementia care.

It’s worth thinking why there was such cognitive dissonance when Helga Rohra, Chair of the European Working Group of People with Dementia, asked in public off the then Dementia Envoy Dennis Gillings ‘how will the cure for dementia in 2025 benefit me?’ Helga lives with dementia now in 2015.

This is because there is lack of trust by people with dementia in some of the initiatives led by Big Pharma on dementia. These accomplished individuals don’t wish to give up their identities to being ‘marketing fodder’.

On the other hand, if the NHS were changed around from being a fragmented illness fixing service to a national health and wellbeing service, where enhancing health of people was actively promoted whatever the care setting, this is a ‘social movement’ many people wth dementia might sign up to.

And Andy, believe me, is an authentic voice in that.

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Building 'cognitive ramps' for NHS Change Day

Andy Tysoe, @dementiaboy, is on a remarkably important mission.

“Hi, my name is Andy Tysoe and I’m a dementia nurse, based at the Countess of Chester Hospital and campaign lead for NHS Change Day #dementiaDO. Part of my clinical role is to help people affected by dementia through the challenge of an acute hospital stay and also to deliver dementia awareness sessions to the staff who work there.”

On Wednesday 11 March 2015, local activities in #NHSChangeDay will take place to recognise the positive changes that have resulted due to the actions people have taken.

And Andy includes a powerful pledge.

“We need to build our cognitive ramps next to physical ones to assist people with cognitive (thinking) disabilities into our public services and buildings, and for me, carers are a crucial part of those ramps not just during visiting time either!”

Here’s the rub.

“Parity of esteem” is currently a big deal in the NHS, to put mental health and physical health on an equal footing. As provided by NHS England,

“The Mandate from the Government to NHS England instructs us to put mental health on a par with physical health, and to close the health gap between people with mental health problems and the population as a whole. But this is only our starting point: we need to go further by delivering ‘parity of esteem’ and commissioning services that are truly person centered in a way that addresses some of the profound inequalities of access to high quality care in England.”

The English law has created this parity of esteem in discrimination offences too. This is from my book to be published by Jessica Kingsley Publishers in July 2015.

From my book

In a seminal article by “The Network Secrets of Great Change Agents” by Julie Battilana and Tiziana Casciaro in the Harvard Business Review, the authors set out the properties of people in networks and how they can effect change.

People living with dementia, caregivers, nurses, healthcare assistants, doctors, and assorted members of the community are all “actors” in a network.

Most social networks exhibit “clusterability”: that is, they comprise groups of individuals who are tightly connected to each other. This can be reinforced by powerful hierarchies, such as in the NHS.

The power of Andy Tysoe, I feel, as a “change agent”, comes from his ability to bridge the NHS with the people it purports to care for:

“People who bridged disconnected groups and individuals were more effective at implementing dramatic reforms, while those with cohesive networks were better at instituting minor changes.”

(Battiliana and Casciaro)

Implementation of a radical change within any organisation can be conceptualised as an exercise in “social influence”, defined as the alteration of an attitude or behavior by one actor in response to another actor’s actions.

Network research has converged upon the notion that the degree of “structural closure” in a network, defined as the extent to which an actor’s network contacts are connected to one another, has important implications for generating novel ideas and exercising social influence. People in positions of power and authority can are not the only people who are influential, sometimes.

Cohesive ties unfortunately can be a source of rigidity that hinders the coordination of complex organisational tasks.

I have been particularly impressed by how Andy has taken to Twitter to lead on his change. This plays on one of the fundamental features of networks. Consider, for example, in a phone network, where the primary transaction is making or receiving calls, anyone with a network phone number can call any other person with a network phone number.

There has been growing recognition in the literature too, that “size isn’t everything”. As regards this, one cannot but help to be impressed by Andy’s conduct with people he’s encountered. Network members can, indeed, develop a reputation for honesty, trustworthiness, and dependability.

This helps Andy see about initiatives in the wider community, such as ‘dementia friendly checkouts’.

dementia friendly till

In “The new era of thinking and practice in change and transformation” from NHSIQ, authors Helen Bevan and Steve Fairman propose characteristics of “The Edge”:

“The edge as a virtual place for building relationships and networks; this is about purposefully positioning change agents at the edge of the organisation, enabling them to interface more easily with others, both inside and outside of the organisation, simultaneously. From this perspective, we see change agents as hyperconnectors, building relationships with other change agents and innovators, utilising open innovation principles to make social connections, pulling knowledge into the organisation, making sense of it and sharing it to speed up change.

The edge as a way of being as a change agent; choosing as a leader of change to operate at ‘the edge’, leading through networks and social connection, looking outwards to the wider world of knowledge, relationships and networks as well as inwards, influencing though the processes of organisational life.”

One of Andy’s main missions is to make the navigation of a person with later stages of dementia more easy through the system, with the help of caregivers in the formulation of care plans. This is very much in keeping with the RCN/Carers Trust “Triangle of Care” (2013).

Andy, like me, is supporting “John’s Campaign“: “the right for carers (particularly family) to stay with a person with dementia if they are admitted to hospital – 24/7 if necessary.” (twitter @JohnCampaign)

A lot can go wrong if such a person with dementia is left bewildered in acute hospital, as the totemic video of “Barbara’s Story” shows.

Leading from the edge has parallels in other sectors. For example, Danone introduced “discovery learning” in business education. This “edgy” method was introduced to facilitate this voyage of self-discovery, exposing “to experiences that are surprising or challenging”

By being at “The Edge”, Andy is in an unique position to help with the aims of raising ‘dementia awareness’, on top of the current “Dementia Friends” initiative, in meeting outcomes of tier 1 of the Health Education England initiative.

This change leadership, of course, is all a far cry from Machiavelli; who is reputed to have famously said that it is better for leaders to be feared than to be loved.

In contrast, in summary, I strongly commend to you Andy Tysoe, for #NHSChangeDay 2015 (#DementiaDo) to bring about awareness of dementia, to support “John’s Campaign”, and to stop discrimination against people with dementia.


Bonetto, T. and Irwin, L. (2013), Danone Leading Edge program – a leadership odyssey, EFMD Excellence in Practice Awards 2013: Executive Summary.

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